Wednesday, 22 June 2016

#FourCandles

It's so bizarre that I am now blowing out 4 cancerversary candles, the time really has gone so fast.

This time 4 years ago I was given the worst news of my life, as I blow out my 4 candles today (actually I cheated and blew them out on Sunday as today I'm having an absolute blast wandering around German vineyards!) I reflect on how fortunate I am.

Here's to loads more candles 😊



P.S. It's impossible to write four candles without thinking of this cracker of a sketch.... 

Tuesday, 14 June 2016

Check Up

Today I had my annual appointment with medical oncology at Redhill. Even though I've been feeling well and I give myself some TLC (Touch, Look, Check) at least once a week, there is just something about the familiar drive to the hospital and the familiar walk to the outpatient's department that makes me feel sick. 

The rational part of me knows that I haven't felt any lumps and that should give me security but all rational thought really goes out the window. Especially with Rob being so poorly lately - don't ask... 2x hospitalisations for diverticulitis and associated complications - one hospital stay was 10 days long :( , my emotions have been tested like never before.

We were waiting in a stuffy, non air-conditioned room for over an hour and a half. The note on the board said they were running 25 minutes late, no-one bothered to come and explain or even acknowledge the people waiting. Really poor show as people's emotions just become more heightened and fraught. 

I was eventually called through and was seen by my oncologist's registrar. She asked how I'd been feeling and told me that in a few years once I've done 5 years on tamoxifen we can try for kids (yippee - 3 years down already)! She then gave my boobs, armpits, collar bone and back a feel and told me everything felt okay and that she'd see me in a years' time. 

Hooray, some good news after the stress of the past month 😊

Friday, 8 April 2016

Ellie's Friends

The Eleanor Rose Foundation is an amazing charity whose motto is "Making the big C smaller". They offer freebies and discounts for adults living with and recovering from cancer. It was set up in memory of Ellie Jeffrey who died from secondary breast cancer at the young age of 29.

I have been applying for some of their freebies for about a year now and last week I was delighted to receive an email that I had won a Heat Magazine Beauty Giveaway worth almost £300!!!

In my beauty bundle was:

- Masque Bar Brightening Sheet Mask
- The Body Shop Drops of Youth
- The Body Shop Drops of Light Day Cream
- Scottish Fine Soaps Co Tangled Rose Body Butter
- Nails Inc Nail Polish in Portobello Terrace
- Nails Inc Nail Polish in Chelsea Grove
- Nails Inc Nail Polish in Charlotte Villas
- OPI Nail Polish in Humidi-Tea
- L'Oréal Paris Nail Polish in Greige Amoureux
- Urban Decay Gwen Stefani Lipliner in Rock Steady
- Barry M Matte Me Up Lip Crayon
- Estée Lauder Bronze Goddess Bronzer
- Bourgeois Rouge Velvet Lipstick Wand in Beau Brun
- Max Factor Lipstick in Marilyn Sunset Red
- Kiko Milano Multicolor Blush
- HD Browtec Eyebrow Pencil
- The Body Shop Camomile Cleansing Oil
- Mïnk & Co False Eyelashes
- Feel Unique Eye Brush Capsule Collection


Thank you so much Ellie's Friends and Heat, I feel very lucky!


Monday, 30 November 2015

Emotional Rollercoaster



A really mixed day of emotions. Rob's grandpa sadly passed away. He's had motor neurone disease since he summer and has been speedily deteriorating ever since. Poor Rob has been ultra stressed, he's got a massive interview tomorrow for a director role at work and having to cope with his grandpa being poorly and being the rock for his family. I felt awful when I found out about grandpa as I was away in Bath with Mish. I offered to come home but he said no. I told him to smash his interview for grandpa so fingers crossed for that.

So with the lowest lows come the highest highs, I just found out my mammogram was NED. 3 years cancer-free - Yippee.

Edit: Rob absolutely kicked butt in the interview and got the job. So proud.

Friday, 13 November 2015

Unlucky for some

Friday 13th. Joy. I'm not generally supersistious, but when I get THE letter on the door mat advising me of my upcoming mammogram, of course it would bloody be on Friday 13th.

Rob couldn't come to the scan so Mish kindly came with me instead. I go to work in the morning, trying to distract myself with inane tasks, they don't help. Drive on autopilot to Mish's house, she drives me to the hospital. I walk the familiar walk to the X-ray department, check in, get the usual quizzical look from the receptionist (head tilt + curiosity + you're so young) and get directed (I don't listen, I already know the way) to the mammogram waiting area.

Another young woman is waiting there, she has the evident chemo curls, I smile at her and wonder if she is on YBCN. I get the usual impatient leg jiggle, mind wandering all over the place. Then I'm called in. I know the procedure, top off, details checked, the mammographer's cold hands, standing awkwardly at the machine, being too short so having to stand on tiptoes but stand as still as possible. The scans are done, they hurt. I look at the mammographer's face and she gives nothing away. Of course she doesn't. Then it's over. Mish gives me a hug and we leave the hospital. 

Now I wait.

Monday, 19 October 2015

Chemoversary #3

Happy Chemoversary to me!

3 years ago on this date I finished chemotherapy. It feels both like it was only yesterday but also like some shitty horrible distant nightmare. Given that it's breast cancer awareness month it seems very apt to remind you all to do your monthly check. Young and old, women and men, we can all get breast cancer so please don't put it off.

If you're not sure what to check for, here's a reminder from Breast Cancer Care




Monday, 22 June 2015

3 Year Cancerversary

3 Years ago today I heard the life changing words of "I'm sorry to have to tell you that it IS cancer". As I blow out my 3 candles today, I think about the YBCN angels and how very lucky I am.


Here's to lots more candles :-)




Monday, 1 June 2015

100,000 Page Views

I am super happy because today my blog has gone over 100,000 page views. When I started writing this blog as a cathartic outpouring, I never dreamed it would be viewed by this many people. If out of the 100,000 views, a fraction of people have been helped in some way or have done some TLC then that it is even more awesome. Thank you to everyone who has read, commented, emailed or got in touch in some way throughout the blog so far - you make it worthwhile :-)
 
 
Addendum: Since starting this post - it's gone up another 600 or so, it's now at 100,658!

Hip Hip Hooray

Today was a good day :-) I had my 6 month check-up with the oncologists who were happy with everything and told me that everything looked (and felt!) good and that they would see me in a years' time. Rob and I also spoke to them about the possibility of stopping tamoxifen after 5 years to try for a baby and the oncologist said he saw no reason why we couldn't. I'm already 2 years down so roll on the next 3 - Yay!

Picture credit: www.amyrobison.com

Tuesday, 3 March 2015

New Job!



So excited to announce that I have a new job! Starting tomorrow I will be the Commercial Manager at ABS Wine Agencies. I am so pleased, excited and keen to get started! When I wrote to ABS speculatively, they originally said they had no vacancies, but because they liked my CV (and me!) so much, they ended up creating a role for me :-)

Monday, 2 February 2015

2 Years NED

2 years ago yesterday I found out that my cancer had gone, that on my second margin clearing operation they had got it all. Today I had my annual check up and saw my consultant surgeon (who I saw back in November when I had the scare). He gave my boobs a quick squodge, felt my armpits (checking the lymph nodes) and tapped my back. Then Rob and I went into his consultation room, he looked at the images from my mammogram, asked how I was tolerating the Tamoxifen and said "Okay, see you in a year"! Awesomeness :)


Sunday, 1 February 2015

50s chic

This weekend was Miss Power's hen do, it was great and really nice to put my job woes to the back of my mind. Amongst the other fun things we did, the bridesmaids had arranged for us all to have 50s style hair and make-up done. Everyone else was able to have victory rolls in their hair, I thought I was going to have to 'settle' for a short style but I am actually super pleased with what they did!



Got home after the hen and switched the calendar to February, I then remembered I have my Cancer check-up tomorrow. I guess the fact that I forgot must mean I'm truly moving on from it :-)

Thursday, 29 January 2015

3 in 3

So in my last post I was feeling a bit down that I hadn't got a job and that I wasn't making massive headway. Well this week I had 3 interviews in 3 days! One was for a wine company in West London, the job and the company sounded great but it took me 2.5 hours to get there, the salary that they would have been offering wouldn't have been worth a 5 hour round commute. Since working with my outplacement support lady, she has helped me identify that one of my greatest career anchors is my work life balance, this certainly wouldn't have adhered to that. I ended up sending a TBNT email to the interviewer, heard back from an ex-colleague who currently works there that the interviewer liked me and was disappointed I'd withdrawn from the application process. So although it wasn't right for me, it was great to have interview practice, nice feedback and get back into the swing of things.

 
 
The very next day I had a phone interview for another wine company, this one felt much better and much more me than the West London one. The company is about 15 miles from my house. I'm keeping my fingers very crossed. There wasn't a role I applied for, it was completely speculative so I would be very excited to work there. I found out later that day that they would like to see me face-to-face next Friday. I would love to get this one....
 
Today I had an interview for a role as a Food Buyer. So outside of wine but using my languages, buying skills, organisation and supplier relationship experience. It was a tough panel style interview with 2 people and it was about an hour and a half long. I think I handled it well though and I should hear back by next week. Fingers crossed here too!
 


Monday, 12 January 2015

Job Searching

I've been feeling pretty down about not having a job, it's miserable and I have no idea how some people (other than those who genuinely cannot work) do not want to have a job. All I want to do is get back into a routine, earning money and having a career. Yes I have been through something far bigger than this but it's still pretty crappy.

I've been working with a lady from an Outplacement Support company provided by my old employer. They've been really helpful, assisting me in writing my CV, helping me figure out what it is that I want to do, helping me identify my career anchors and getting me interview ready.

Keep your fingers crossed that the universe is kind to me soon....

I should probably remind myself of this sometimes.....                               

Thursday, 18 December 2014

An Odd Coincidence

2 years ago today I was fast asleep having the bastard c cut out of me. Today, I just got handed my P45....
 
 
Easier said than done, but rather than being sad about this odd coincidence, I am going to (try to) look at it as both being about new starts....

Tuesday, 9 December 2014

Time to Fly

redundant
rɪˈdʌnd(ə)nt/
adjective: redundant
not or no longer needed or useful; superfluous.


Sad news. I didn't get a job in the new company. I'm being made redundant as of Christmas Eve... Happy Christmas to me! My head is all over the place at the moment. If I am truly honest with myself, the journey to NW London would have been horrible, about 2 hours each way. But I want to be wanted. It's so hard. People say that I shouldn't take it personally, it's not me that's not wanted any longer, it's my role. But that's so much easier said than done. I've worked for my current company for 7 years and I almost feel like I'm in mourning for my work family. I will miss the camaraderie and friendship more than anything, but if I reflect honestly, it's not been the same place for a few years now. It's scary to be pushed rather than to jump but maybe it's all for the best. Let's see what the future brings. As this blog shows, I've faced far scarier things in my life so far!

Qué Será Será

Today I find out if I have a job at the new company or not. I'm anxious, nervous and apprehensive. I hate other people holding the cards in my life. If I do get a job there then it will be an exciting new change and if I don't then it will also be an exciting new change.
 
 

Thursday, 13 November 2014

Not Again....

*Spoiler Alert*

When I was younger, I used to have something called Trichotillomania. Basically, when I got anxious, nervous or worried, I used to twist my hair round and round my finger and pull it out at my crown. It led to me having a big bald spot in the centre of my head which I covered by brushing my hair over it. I eventually grew out of it, but I've noticed that now when I'm in the same anxious state, I continually touch my bad boob. Not in a sexual way but in a squeeze it, feel it, search it, sort of way.

About a fortnight ago, I found out that the company I work for is merging (in truth it's an acquisition) with another company, and as a result my job is at risk. SBG (Self-Boob-Groping) goes into overdrive. And then I find it. A lump. No no no. Oh please no. Shit. My already stressed out brain goes into meltdown. How in the heck am I supposed to process this much stress. We have just moved house (said to be one of the biggest life stressors), I am potentially losing my job (another stressor) and now another lump. The trouble was, as soon as I found the lump/ridge/oddness, I couldn't leave it alone. Which made it swell. Which made me feel even worse. Which made me touch it more. Complete vicious cycle.

As it was my time of the month, I decided to leave it a week before calling the doctor. During your period, hormonal changes and fluctuations can cause your breasts to feel lumpy. I put a massive plaster over it to stop me touching it, and hoped against hope that it would disappear.

I desperately tried to put it out of my mind over that week but I couldn't. I didn't tell many people about it (I had to tell HR at work because of the impending job loss), because admitting I'd found something and saying it out loud somehow made it more real.

A week passed and I peeled the plaster off. It was still there. Felt myself about to break, but managed to centre myself and use some of the calming breathing techniques I learnt on my Cancer Survivorship Course last year. I waited until 8am when the doctor's surgery opened and made the call. I had to call 24 times as it was permanently engaged, when I finally got through I was given an appointment for that afternoon.

I went to the doctor's and was sat in the waiting room for about 15 minutes. I could feel my heart rate rising with every minute sat there. I was eventually called through, and as it was a new doctor's surgery (as we have moved house, I also moved doctor) they didn't know any of my medical history. The male doctor took notes and then called in a chaperone. He gave my boobs and armpit a good feel and confirmed he could feel what I was talking about. He said to me that he didn't think it was anything significant, but as it was definitely *something* and given my medical history, he had to refer me.

When a doctor suspects a Breast Cancer, you have to be referred under the 2 week emergency referral period. I was called the very next day (Wednesday) and was given an appointment at the breast clinic for the following Thursday.

The next day a letter arrived in the post, the NHS stamp in the right hand corner, familiar and sinister, instantly recognisable. I open the letter and it tells me everything I already know. I have an appointment at Mr Ball's One Stop Clinic at 10h20 on Thursday next week and it details all the procedures I *could* go through. I read the letter. A One Stop Clinic does mean you get the results on the same day which is something at least. I digest all the info. But I know all of this already. Which is what makes it worse. Last time I thought it wasn't anything. What if it is again....

What followed was the longest week ever. It made me remember the wait I had before. Not only did I have this to contend with, but in the middle of the wait, we also found out more about the new work structure and my role as it is now doesn't exist. How much stress is one person supposed to cope with :(

I don't know how I got through it, but Thursday eventually arrived. I spent the morning feeling sick, being sick and crying, as I was very much aware that within a few hours, my world could be right back in 2012 again, but this time with the threat of not having a job. Rob drove me to Crawley hospital and we were told that the oncologist was running half an hour late. It's always the way but it does absolutely nothing for your nerves.

Eventually I was seen by Mr Ball. He ran through my medical history and then felt my boobs and my armpits. I just about held it together, lip quivering and a few tears falling. He then said to me that he thought it was scar tissue but to be 100% he wanted me to have a Mammogram and Ultrasound. He said that if the radiologists thought it was serious, then I would need an MRI as well which would involve another weeks' wait for results. I knew this was coming, but I feel horribly sick. There's a term called Scanxiety, it's the fear cancer patients face when they know scans are approaching and would 100% say I suffer from it.

I walk round to the x-ray department and am told where the mammogram waiting room is. I know already. I've done this before. Rob and I walk there in a sort of brain fog. And we sit for another 40 minutes. The wait is excruciating. I'm the youngest person there by a country mile (what is a country mile anyway?!) I'm called into the mammogram side room to confirm my details and I burst into tears. The lady doing the mammogram is lovely. She tells me she remembers me from before. I suppose you would do seeing that I was 28 at diagnosis and everyone else in the waiting room looks over 50. She also tells me that as my annual mammogram was due in December/January, this one would be replacing it. I sit in the side room for 5 minutes and then I'm called through to the room. It's hideously familiar. My boobs are scanned and squashed, it hurts but I know it's what's needed. I try and read her face but she gives nothing away. She must have her game face completely perfected as she does this every day.


I then have to wait another 30 minutes for the ultrasound. I am called to the room. I take off my top and lie on the bed. Tears fall again. The doctor doing the ultrasound walks in and tells me that the mammogram looked clear. A little bubble of hope rises in my chest. He then spends a good 10 minutes performing an ultrasound on the area I have found the lump in. He is very kind in the way he talks to me. He has a soothing voice which calms me a little. He then turns to me and smiles. "It's scar tissue Joanna" he says. I fully burst into tears. Overwhelm. Happiness. Relief.

They want me to keep an eye on it anyway, just in case. I have my follow-up appointment in 3 months that I had booked in anyway (it was due to follow my January mammogram), and they will no doubt check in on it again then. But for now, I have one less life stressor to worry about.

Panic over.

Sunday, 19 October 2014

Chemoversary #2

2 years ago today I finished chemotherapy. I don't want any fanfare or recognition, but to simply remind everyone (young, old, men, women, those with a family history of cancer and those without) to do their monthly TLC