A Painful MRI

My 3 monthly MRI is due. Yay. Not. Pfft. I hate MRIs, they are so claustrophobic and loud and painful, bleurgh. This one also ties in with the one my onc requested I had at the mixed bag meeting.

Beppe is currently broken 😞 There’s an issue with the coolant or something so Lesley at work has very kindly been driving me to and from the office. She kindly takes me to work today and I work all day until Rob picks me up at 16:30 and drives me to East Surrey for my scan. 

As this scan is my 3 month check, it’s a long one too. The nurses take 7 bloody tries before they get the cannula in. It’s not their fault. I hate my veins and I bet the nurses do too! 😥 I’m in the tube of hideousness for almost 2 hours. It’s loud and bloody painful. Painful because I cannot move and my back is so ruddy sore at the moment. Also painful because they strap a chest plate type thing on me that pushes on my sore chest. They have also properly clamped my ears in and they hurt too! The music that sometimes plays through the headphones to mask the noise is broken so I just have to lie there listening to all the loud noises. I try to pass the time by singing to myself, but then that makes me dance my feet. I get told off for moving and they have to restart part of the scan. Oops. Poor Rob is just sat outside, playing on his Switch, bored out of his mind. Eventually it’s done. I am helped off the bed because I feel like I could collapse. I am busting for a wee, I get dressed, go to the loo and as I am getting up I catch the cannula and it rips out of my arm. Blood pours everywhere, all over the floor, Rob goes grey, uh oh. The nurses clean me up and we are finally allowed to go.

On the way home in the car, I reflect that I’m actually fully expecting to see progression when I get the results of this scan. My back is immensely sore at the moment. I just cannot see how the spine has not got worse. I take pain relief constantly. At work I use a heat pad non-stop. I am fed up of popping so many painkillers, taking nightly oramorph and disturbing both Rob and my sleep, it just cannot carry on this way. I have already made my mind up that when I see Dr P tomorrow I will be asking for a blast of palliative radiotherapy on my back, progression or not. This will mean I probably have a week of awful pain whilst the rads do their thing but then hopefully some pain will ease. 

MRI Scan and a Gig!

Today was a bloody weird mixture of a day!

First thing I had a delightful MRI at East Surrey hospital. It has been snowing here for the past few days, luckily yesterday Rob put winter tyres on Beppe (my little Italian car!) and we drove to Redhill. The MRI was of my head, spine and chest. It was awful. Normally I am okay with MRIs, I just get on with them because there isn't much else you can do. But since my denosumab last week, I have been having massive pain flares. I had to lie very still on the hard MRI bed, with my head strapped into a thing that felt like a scold's bridle and a weight thing on my chest for two. fecking. hours. When you are having extreme pain in your spine, not being allowed to move whilst lying on something hard is not fun at all. I could cope with the beeping, whirring and clunking noises but it was unbelievably painful to lie that still for that long. Anyway I did it. Legend.

We then drove in the snow to Gatwick as we are having a few fun days in London. We caught the train from Gatwick up to London and got to our funky hub hotel. We chilled out for a bit, had dinner at The Diner and then went to a tiny venue called Hoxton Hall to see a singer Rob and I love called Aurora. There must have only been 250 people there so it was intimately awesome.

She also sung one of my motivation songs called Warrior. Have a listen

The MRI

Today I went to East Surrey Hospital for my après chemo MRI. It suddenly occurred to me whilst I was in the MRI waiting room, that if you haven't had one before, then the prospect of it must be pretty blimming daunting (& to be honest, it still is fairly horrid even if you have had one before).

So, although I had had an MRI before, it was right at the beginning of this rollercoaster, and to be honest with you, I couldn't really remember what had happened. I thought therefore, it would be a good idea to explain exactly what happens, to try to alleviate some potential fears.

Firstly, what is an MRI? Well, according to Wikipedia, an MRI (Magnetic Resonance Imaging) is a way of seeing the body's internal structures in extreme detail.

An MRI scanner is a device in which the patient lies within a large, powerful magnet where the magnetic field is used to align the magnetization of some atomic nuclei in the body, and radio frequency fields to systematically alter the alignment of this magnetization. This causes the nuclei to produce a rotating magnetic field detectable by the scanner—and this information is recorded to construct an image of the scanned area of the body. Magnetic field gradients cause nuclei at different locations to rotate at different speeds. By using gradients in different directions 2D images or 3D volumes can be obtained in any arbitrary orientation.

MRI provides good contrast between the different soft tissues of the body, which makes it especially useful in imaging the brain, muscles, the heart, and cancers compared with other medical imaging techniques such as computed tomography (CT) or X-rays. Unlike CT scans or traditional X-rays, MRI does not use ionizing radiation.

To start with, you are sent your MRI appointment letter and given a questionnaire (similar to this one) to fill in.

When you turn up at the MRI department, the image radiographers explain what is going to happen. I was told that I would be inside the MRI for around 20 minutes - but I have read in some cases people can be in the tube for around an hour, so it must vary from person to person.

Then then asked me to strip down to my pants, pop on two gowns, and remove all metal objects. This means you need to take off all jewellery (including your watch) and then put them into a locker.

After that I had to get onto the bed and they told me they were going to put a cannula into a good vein. It took them a while to find one, but they eventually found a good one in my hand. The cannula was put in because I was having what is known as an MRI with contrast, where half way through the scanning I would be flushed with dye. (What the dye basically does is enhance scan images).

I was then led through to the MRI room where the scanner was (East Surrey have this year had a new £750,000 MRI scanner installed which is unique in the UK) & they put a marker (which looked like a cod liver oil capsule!) on the side of my breast.

This is what an MRI scanner looks like:

I was then asked to open my gowns, lie face down on the table (which looks like one of the ones you find in spas when you're having a massage) & position my boobs. The compartments I had to put my boobs into can only be described as feeling like the salad drawers in the fridge!

I then had a huge pair of headphones (no music, just to block out the noise) placed on my head, given a buzzer to squeeze if I felt I needed to, and told to lie very still. This is probably a good point to remind you to use the toilet before you have your MRI as you can't move during it, and needing a wee isn't very conducive to staying still!

I then had a cushion out under my legs which the automatically inflated & asked me to position my arms above my head. The table then automatically moves you backwards into the scanner & it begins. I can't tell you if it was dark or not because I was facing downwards & I kept my eyes shut the whole time. I had to also keep reminding myself to breathe as I found I was holding my breath!

The noises are very loud and sound almost electronic or like computer game sounds. They are also not rhythmic and are different lengths & frequencies, so rather than listen to them, I tried to just block them out by thinking of other things. I found this YouTube video helped prepare me for what it would sound like.

About half way through the MRI radiographers spoke to me, asked if I was okay and then explained I was going to be having a scan which would last about 8 minutes. That happened and then they spoke again & told me they were going to automatically start the dye going in. The dye felt cold up my arm but nothing else. Then I had around another 15 minutes of scans and it was finished.

The table then releases you from the scanner & the radiographers sit you up very slowly (as my legs had gone to sleep). They then took the cannula out of my hand, I got dressed and (after being told to drink lots of water to flush the dye from my system) I was free to go.

The thought of the MRI is definitely worse than being inside it but I'm still very glad it's over and done with.