Jojo's Journey

Breast Cancer: My story in my words

Wednesday, 28 February 2018

Fun in London

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After the gig yesterday Rob and I went to a really funky place for breakfast called The Cereal Killer Cafe . There were loads of retro cere...
Tuesday, 27 February 2018

MRI Scan and a Gig!

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Today was a bloody weird mixture of a day! First thing I had a delightful MRI at East Surrey hospital. It has been snowing here for th...
Thursday, 22 February 2018

Denosumab

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I had my latest bone strengthener today. It is *so* much better than Zometa ! My poor veins were just not playing ball for Zometa any more....
Saturday, 10 February 2018

Making Memories in Mexico

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¡Hola from Mexico! Who would have thought it. I have gone from being a frightened, scared to leave the house, agoraphobic mouse to trav...
1 comment:
Saturday, 13 January 2018

Shining Stars

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There are two shining stars in the sky tonight. Caroline , Sophie, it was an absolute pleasure xxxx
Monday, 25 December 2017

Merry Christmas!

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I am starting to feel more and more like me every day, Merry Christmas!
Friday, 8 December 2017

Good Results!

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I'm very very pleased to let you know that the lesions in my brain are not mets. After two brain scans and some terrifying waiting (6 w...
3 comments:
Wednesday, 6 December 2017

Flying

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The light has been switched on! The drug I was prescribed (Efexor SR/Venlafaxine) to help with my (quite frankly debilitating) hot flushe...
1 comment:
Wednesday, 1 November 2017

Stepping out of the shadows

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So I haven’t blogged properly in a long time. The truth is it’s been a difficult ride of late. So, what’s new in JojoLand: I’m no longer ...
2 comments:
Monday, 9 October 2017

Strong, Brave, Proud?

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I just saw this, it actually feels like someone wrote it just for me....
4 comments:
Thursday, 5 October 2017

Missing

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I feel like I'm missing. Like the real me is lost. Like I disappeared on May 17th 2017. I keep trying to find the real Jo, the one who ...
Friday, 15 September 2017

Cycle 2 - Mid-way check & cancer elsewhere....

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Today we went to Guildford for the cycle 2 mid-way check. Because last week I had some really awful times, we wanted to flag these to TC to...
Friday, 1 September 2017

End of Cycle 1

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At the moment it feels like I'm having non-stop hospital visits. It's so draining and I just want some normality back in my (and Ro...
Wednesday, 30 August 2017

QT Check and update

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Last Friday we went back to Guildford for my QT prolongation check-up. I had an ECG and had a sneak peak at the numbers, one was 310 and th...
Friday, 18 August 2017

Cycle 1 - Halfway check

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So I've just had my two week check for my first cycle on my trial drug. Rob drove me to Guildford and we met with Avril (the research ...
Tuesday, 15 August 2017

Where are you Sandman?

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Until this shituation arrived, I never realised how much I took for granted. Walking, driving, sleeping, working, thinking. All of these an...
Saturday, 5 August 2017

Not so brave

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This is both physically and emotionally exhausting and some days I really struggle to cope. Today is one of those days. I cry from overwhel...
2 comments:
Friday, 4 August 2017

I'm on the trial!

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Today I had an appointment at Guildford hospital with my trial onc TC and my research nurse Avril. Avril told me that the bloods I had done...
Thursday, 27 July 2017

Bone scan, new drug & a bit of a blow

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Today I went to Guildford for my bone scan for the trial. First we had a chat with the trial nurse Avril who wanted to see how I was and al...
Monday, 24 July 2017

CT Scan

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Today is a week since my operation, I'm recovering physically and mentally a small bit each day but it's been very tough going. I ...
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