Jojo's Journey

I just saw this, it actually feels like someone wrote it just for me....

I feel like I'm missing. Like the real me is lost. Like I disappeared on May 17th 2017. I keep trying to find the real Jo, the one who ...

Today we went to Guildford for the cycle 2 mid-way check. Because last week I had some really awful times, we wanted to flag these to TC to...

At the moment it feels like I'm having non-stop hospital visits. It's so draining and I just want some normality back in my (and Ro...

Last Friday we went back to Guildford for my QT prolongation check-up. I had an ECG and had a sneak peak at the numbers, one was 310 and th...

So I've just had my two week check for my first cycle on my trial drug. Rob drove me to Guildford and we met with Avril (the research ...

Until this shituation arrived, I never realised how much I took for granted. Walking, driving, sleeping, working, thinking. All of these an...

This is both physically and emotionally exhausting and some days I really struggle to cope. Today is one of those days. I cry from overwhel...

Today I had an appointment at Guildford hospital with my trial onc TC and my research nurse Avril. Avril told me that the bloods I had done...

Today I went to Guildford for my bone scan for the trial. First we had a chat with the trial nurse Avril who wanted to see how I was and al...

Today is a week since my operation, I'm recovering physically and mentally a small bit each day but it's been very tough going. I ...

Woke up this morning feeling very weird and spaced out. My arm was super sore, red, hot, swollen and I couldn't bend my fingers. I spen...

Rob drove me to East Surrey hospital and we arrived at 7am. Just as we were checking me in to reception, I was called by a nurse to registe...

Today I had a phone call from East Surrey hospital saying they had a cancellation and could I go in that afternoon for the scan on my ovari...

Today I had a meeting with the gynaecologist to discuss my oophorectomy (pronunciation is they title of the post!) I was not feeling great ...

Today I had a check-up with my very lovely "trial" oncologist at Guildford. He's so kind and patient and really takes the tim...

So my rads marathon is done. I'm not going to say "rads are finished, hooray" because there will more than likely be more rad...

5 years ago, it's oh so clear, In the waiting room, the rising fear. Walking into that stuffy room, Increasing dread, impend...

So today ( one month on from receiving the dreadful news ) I had to have a PET scan. That takes me to 8 appointments this week (5x rads, 2 ...

A busy day today! First I had rads, halfway through the bastard blasting now - huzzah! Then Mum drove me over to Guildford (collecti...